Alexa, play “90s music” playlist on Spotify.
Alexa, dim the lights to movie mode.
Alexa, send my blood sugar levels to my doctor.
Wait, what?! Yes, that’s right. The technology surrounding us is partnering with the digital health sphere.
Maybe you’re thinking this is old news. Your hand poised near this screen already sports a smartwatch. You can name a bevy of mobile apps to track your steps or to keep a food diary. Your grandpa, who still can’t figure out how to turn off ‘all caps,’ can monitor his blood pressure with ease via his at-home device.
All this data collection inevitably generates a lot of information that quantifies our health status. But why are we collecting it? And what can we do with it?
We don’t need more apps.
We need more integration.
Enter the world of digital health integration.
Instead of pursuing the burgeoning innovation of technology, this approach aims to innovatively integrate the technology we already have. It connects health care providers with patient-generated health data (PGHD) from wearable devices, mobile apps, and at-home monitors.
In short, it makes all this collected information actionable.
The idea is that, by putting data from patients’ devices in the hands of their providers, we will provide more effective care.
Take this on-going, 2016 pilot study, for example. Validic, a tech startup, and Sutter Health, a non-profit in northern California, collaborated to improve care for type 2 diabetics. Patients were armed with an app connecting all devices tracking blood sugar levels, weight, etc. What if someone’s still using an old-school blood pressure cuff? No problem. Validic’s VitalSnap™ technology could interpret a photo of the reading taken on a patient’s smartphone.
The app sent the compiled information to providers through a single, secure pipeline and delivered it into the patient’s electronic medical records. Every morning, the nurse care manager would receive a summary of the captured data. The system color-coded patients based on who needed immediate attention (red), who could benefit from a follow-up reminder (yellow), and who was stable (green).
The patient didn’t do anything differently. The data simply went to a place where someone could take action on it.
This level of improved, priority-based care can lead to better diabetes management, closer patient-provider connections, and fewer hospitalizations.
Not only does this initiative inform diabetes care, but these new changes also provide a tremendous opportunity for healthcare management.
Projects of this scale require system-wide changes.
System-wide changes require thoughtful management.
To help, the Office of the National Coordinator for Health Information Technology published a set of project guidelines based on observations from the pilot study. These guidelines proposed a framework to facilitate practices in effectively using PGHD data, covering everything from how much patient data to record and where to store it.
Infrastructural and workflow modifications of new initiatives can be difficult to navigate. Guidelines such as these can serve the federal government in creating national standards on collecting and using PGHD in research and in clinical care.
It’s ultimately about the right combination of technology and human touch.
PGHD doesn’t have to cause data overload. A system-wide architecture of information integration, coupled with the right analytical tools and clinic workflow, can help care teams better support their patients.
We’ve got the potential to transform the patient experience.
It’s time to integrate. Innovatively.
Great read! With some really nice practical tips in there!
It got me thinking… There have been massive problems in providing continuity of care to people on the move in recent years. For example, there are no continuous medical records for many migrants as they through entry and transit countries to their destination. This results in ineffective treatment and loss of incredibly important medical information. It would be amazing to see PGHD being used to solve this problem – at the least it would be great to provide people with the ability to store all the health information they receive in one place, so that it could be accessed whenever they access new health services. Lots of food for thought, thanks for writing!
¡Muy buen artículo Amanda, mis felicitaciones!
Estos temas son los que más me apasionan en la actualidad y es el paradigma en que se basan los sistemas de información en salud, no pensar en la existencia de un único sistema sino en la existencia de un ecosistema de soluciones donde se encuentre la información y que esta información sea compartida entre los sistemas para ser accedida en forma ubicua por el paciente y los profesionales de salud tratantes, donde estos se encuentren.
Existe una organización internacional que ve los temas de gestión de información en salud llamada Healthcare Information and Management Systems Society (http://www.himss.org/) y una segunda organización llamada Integrating the Healthcare Enterprise (http://www.ihe.net/) que busca la interoperabilidad entre sistemas, ellos organizan un evento anual (creo que es anual) llamado Connectathon, en la cual diferentes empresas tienen la oportunidad de ver si sus sistemas se conectan con otros sistemas a través de estandares internacionales como es Health Level Seven (http://www.hl7.org/) o Digital Imaging and Communication in Medicine (https://es.wikipedia.org/wiki/DICOM).
En un futuro no muy lejano, toda nuestra información estará disponible para mejorar nuestra salud, la cual gestionada por inteligencia artificial nos dará una atención oportuna y preventiva para cuidar y mejorar la salud.
¡Un abrazo y felicitaciones por el artículo!
Yes, exactly! I couldn’t agree more. Beyond integration with clinical care, PGHD has incredible potential to put power in the hands of the people. Particularly, it can be used to mobilize marginalized groups who have lacked that ability in the past. It evokes a lot of the key concepts that we’ve seen in the framework from our new health promotion unit. Way to be ahead of the game, and thanks for your comment, Pete!